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Scientific Section |
Derbyshire Royal Infirmary, Derby, UK
Derriford Hospital, Plymouth, UK
Bristol Dental Hospital, Bristol, UK
GKT Dental Institute, Department of Oral Health Services Research and Dental Public Health, Kings College, London, UK
Address for correspondence: Miss A. McNair, Orthodontic Department, Derbyshire Royal Infirmary, London Road, Derby, DE1 2QY, UK. Email: annalise.mcnair{at}nhs.net
Received 8 August 2005; accepted 21 November 2005
| Abstract |
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Design: Study using qualitative research methods.
Setting: Patients were recruited from the orthodontic departments at Derriford Hospital and Bristol Dental Hospital, and from Specialist Orthodontic Practices in Plymouth and Solihull.
Subjects: A rolling sample of patients from a list of orthodontic patients under treatment at each site was selected. Twenty-six patients took part in five focus group meetings. Three patients took part in semi-structured telephone interviews.
Methods: Participants were invited to participate in either a focus group meeting or a telephone interview. The transcripts of these meetings were analysed by two researchers working independently. Issues of importance to patients regarding the delivery of orthodontic treatment under the NHS were identified.
Results: The issues identified included being treated with respect by the clinician and being included in discussions about treatment. Participants tended to rely on their peers for advice about what to expect from treatment. The patients also discussed the benefits to them of undergoing orthodontic treatment. These included an improved appearance and increased self-confidence.
Conclusion: This qualitative research has identified issues that are important to adolescent orthodontic patients. These issues will be used to form the basis of a patient-centred measure for auditing patients perceptions of orthodontic treatment under the NHS.
Key words: Orthodontics, delivery of treatment, patient satisfaction, qualitative research
| Introduction |
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It is now recognized that, to be of value, a measure of satisfaction needs to be patient-centred. It is only relatively recently that health service providers have developed a view that patients can provide reliable judgements of their experiences of health care.2
In the past, the majority of measures of patient satisfaction have been based on issues considered to be important by clinicians. This is now recognized as erroneous as it has been demonstrated3
that there is a clear mismatch between what general dental practitioners and patients consider important with regards to the delivery of treatment.
Orthodontics is unusual because the demand for treatment is mainly driven by patients and their parents and the demand for treatment is increasing in all age groups.4
Orthodontics is a speciality that relies heavily on patient cooperation for a successful end result; therefore it is important that treatment is delivered to meet patients perceived needs and expectations, wherever possible.
The literature currently available about patient satisfaction with orthodontic treatment is sparse and previous studies have focused on issues of concern to parents. Only four studies5
8
have focused on patients opinions of the delivery of orthodontic treatment. OConnor6
found that during treatment, patients concerns centred on the appearance of their appliances and pain, together with diet restrictions and waiting room delays. At the end of treatment, patients recommended more accurate treatment-timing estimates and discussion throughout treatment. Bennett and Tulloch7
also examined patients views at the end of treatment. They found that patients were generally satisfied with their treatment outcomes, but all expressed dissatisfaction with some aspect of the treatment process.
Although it is now generally recognized that patient satisfaction studies need to be based on issues of importance to patients, only one7
of the latter studies used qualitative research methods to examine patients views. This study involved orthodontic patients who had been treated in the United States where the delivery of healthcare is very different from the United Kingdom (UK); therefore the results are unlikely to be generalisable to this country. At present there is no commonly agreed measure for auditing the process of orthodontic treatment from the patients perspective in the UK. Most recently, Travess et al.9
have designed a patient-centred measure, through qualitative research, to examine the issues surrounding the process of delivery of orthognathic care. Orthognathic patients however, may not have the same expectations or perceptions of orthodontic treatment as non-surgical orthodontic patients.
There is then, a clear need to identify the issues of importance to young patients with regards to the delivery of orthodontic treatment within the NHS. These issues can then be used to form the basis of a patient-centred measure, which can ultimately be used to audit patient perceptions of the delivery of orthodontic care. The aim of this study was to use qualitative research methods as a first step in the development of a tool to examine adolescent patients experiences of orthodontic treatment.
| Method |
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Participants were initially selected for the study from clinic lists of patients who were under active treatment at the orthodontic departments at Derriford Hospital and Bristol Dental Hospital. The names were taken from the lists consecutively to provide a rolling sample of patients undergoing a range of orthodontic treatments with different clinicians. Patients aged 12 to 18 years of age were included in this study. Cleft or syndromic patients were excluded, together with orthognathic cases.
A series of focus group meetings were arranged. The study protocol was to hold meetings on a weekday evening at a time that would be convienient to participants. Patients were recruited by the orthodontist providing their treatment. Subjects were given a letter of invitation for them and a friend to attend a focus group meeting a buddy system. They were also given an information sheet about the study. A letter explaining the purpose of the study was given to the patients parents/guardians. The buddy system10
was used to encourage participation in the study. It was hoped that this would put participants at their ease, so that they would be more likely to contribute to the discussion. If the friend had any experience of orthodontic treatment then they would also be encouraged to join the discussion. Additional invitation letters and information sheets were also provided for the patient to give to their friend. The participants were advised that the information collected was confidential and would not affect their future care. It was also important to ensure that the participants were aware that they were free to leave the study at any time. Written consent was obtained from the patient and their friend. Their parents/guardians also gave written assent before commencing the focus group, using forms designed for the study.
Each focus group was held in a non-clinical environment and refreshments were provided. The researchers chose locations that were easily accessible by public and private transport. The participants travel expenses were reimbursed.
The focus groups were led by a trained facilitator. At the start of each meeting a broad outline was given on the purpose of the study by the facilitator and the areas to be covered were defined. A topic guide had been previously developed through analysis of questionaires already developed to measure patient satisfaction5
8
by the researchers. This provided a framework for the discussions, but the discussions were flexible according to the experiences of the participants, allowing them to expand on any areas of interest that arose. The meetings were tape-recorded, with the participants permission, and a researcher took field notes.
At the beginning of each meeting, participants were asked to introduce themselves and talk briefly about their hobbies. This, together with the field notes, was used to help the transcriber identify when each participant was talking. Each focus group lasted between one and two hours. At the end of each focus group the tape recordings were transcribed by an independent transcriber into Microsoft Word© documents. The transcripts were compared with the field notes to confirm the topics of discussion. The topic guide was adapted to reflect the analysis of the focus groups as the study progressed.
| Change to the Study Protocol |
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The focus groups involving patients under treatment in specialist practice were held immediately after the patients had attended for the removal of their fixed appliances, whilst waiting for their retainers to be fitted. These arrangements were made to improve attendance as it was felt that there would be less inconvenience. Since these focus groups took place during the practices normal opening hours, the buddy system was not used because it was considered unreasonable to invite a friend to attend during school hours.
| Methods for the telephone interviews |
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| Data Analysis |
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For the analysis, the transcripts were divided into units of speech. A unit of speech was defined as a continuous period of speech by an individual. Each unit of speech was examined separately and themes concerning the delivery of orthodontic treatment were identified. Codes were then assigned to the identified themes that emerged from the data. Each unit of speech could reveal several different themes concerning the delivery of orthodontic treatment.11
After analysing each transcript the researchers compared the themes that they had identified and a common set of themes were created. The researchers then examined the transcripts again using the new set of themes and rated the frequency of occurrence of each theme for each transcript. At the end of the study the overall frequency of each issue was calculated to give an indication of the relative importance of each issue.
The stages of this study are summarized in Figure 1
, including the future stage of development of a patient-centred measure of satisfaction of orthodontic treatment under the NHS.
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| Results |
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| 1. Reasons for treatment |
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I just wanted straight teeth.
Participant in focus group 4
Coded 1.6 reason/appearance
I was worried that lots of people would tease me about my teeth.
Interview participant 2
Coded 11.12 outcome/teased if no treatment
| 2. Experiences of wearing braces |
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a. Clinical surroundings
Within this category the sub-theme on surroundings included observations about the decoration of the waiting room and the number of seats available.
Its good as they have pictures of people that have had treatment on the wall so you know what yours is going to look like and they look really happy and smile.
Participant in focus group 4
Coded 9.3.2 waiting room/pictures
More seats sometimes, especially at busy times.
Participant in focus group 3
Coded 9.2.3 waiting room improvements/seats
b. Appointment times
The participants in this study had a wide variety of opinions regarding missing school for orthodontic appointments. Some patients were concerned about missing classes whilst other patients relished having the time off.
I used to have mine in the afternoon because I used to be at a different school but a couple of months ago I changed and I started having them at lunchtime because they dont like you having them in lessons.
Participant in focus group 4
Coded 3.8 patient/missing school
c. Parents attending appointments
Some of the participants stated that they liked to be able to have the choice to have their parents attend the appointment with them, especially during the initial parts of treatment.
If someone was having anything big done, like when I got it on I obviously wanted her with me but I wasnt always bothered when I was just getting it tightened.
Participant in focus group 3
Coded 4.3.3 parent/into clinic for fit
Coded 4.3.4 parent/not concerned if attends
d. Clinician factors
The participants remarked that the clinicians and nurses treating them were kind and supportive. The participants also appreciated being treated with respect.
They were very friendly and they sort of talked to me, rather than talking to my mum about me... so it made me feel at ease... Treating me with respect, which was good.
Participant in focus group 1
Coded 2.3 orthodontist/good
Coded 2.10.1 orthodontist/discusses treatment with patient
Cause its a two-way process cause if you dont explain then people may think Im not gonna wear my bands.
Particpant in focus group 3
Coded 2.1.1 explain/information on treatment
e. Information on braces
The analysis revealed that there are a variety of different methods available to pass on information to patients about orthodontic treatment. Most orthodontists discuss length of treatment and diet advice with their patients. Some participants were able to watch a video at the surgery whilst others where shown photographs or were given leaflets to take home with them.
I had to watch a video... it was just all about braces and cleaning your teeth.
Participant in focus group 5
Coded 2.1.5 explain/video
I had a sheet telling when I had the brace which was definitely going in the bin.
Participant in focus group 5
Coded 2.1.2 explain/leaflet
f. Compliance
Through the discussions during the focus groups and interviews it was clear that the patients understood the reasoning behind the oral hygiene instruction and diet advice but on the whole chose to ignore the clinicians recommendations.
I didnt want to do it in school because the tap waters a bit dodgy sometimes so I did it when I got home. Its embarrassing as well cause you are brushing your teeth in front of all these people so... oh god...
Participant in focus group 4
Coded 3.2.2 compliance/oral hygiene
Coded 3.4.1 feelings/embarrassed
I drank fizzy drinks; he said that youre not really meant to but still drank it.
Participant in focus group 4
Coded 3.2.3 compliance/diet advice
Youre supposed to brush your teeth three times a day. I did it three times a day the first six weeks then I just couldnt be bothered. Youre supposed to use mouthwash as well. She gave me a free bottle and then I bought another bottle after that and then just didnt bother doing it. It didnt make any difference when you did use it noone really noticed!
Participant in focus group 1
Coded 3.2.2 compliance/oral hygiene
g. Experiences of braces
This category included a number of sub-themes, which were related to the patients experiences of orthodontic treatment including pain during treatment and breakages of the orthodontic appliance.
I play the trumpet. Occasionally if I play it for too long it might make a small indentation on my inner lip thing and that hurts but the only problems I find with it are the trumpet and eating cause sometimes stuff gets stuck in there and its hard to get it out and that hurts occasionally.
Interview participant 1
Coded 6.3.5 treatment/musical instrument
Coded 6.4.2 fixed appliance/pain
h. Influence of Peers
This category related to the information received from peers and included comments regarding information on pain and ulcers. The participants concluded that this information could be helpful, but could also be unreliable, and that it may be best for patients to make their own judgement.
They use to seem like a bad thing cause not so many people use to have them but now theyre not really taken notice of anymore, everybodys got them.
Participant in focus group 1
Coded 5.2 peers/socially acceptable
Id spoken to friends that had braces on and some people said it hurt and Id had different views really so didnt know what to think until I had it on and actually experienced it.
Participant in focus group 4
Coded 5.1 peers/information to patient
i. Views on living with braces
Patients were most concerned about the appearance of the appliances, especially initially, but admitted that they did get used them.
It was fine really.. At first it seemed really strange but I wasnt too self-conscious actually I sort of just got used to it.
Interview participant 1
Coded 6.4.1 treatment/fixed appliance/appearance
Coded 6.4.5 treatment/fixed appliance/got use to it
With the elastics bands, they came off really easily so youd be sitting eating in a restaurant and you would have to re-attach it and you dont want everyone to watch you do it so sometimes I just use to leave it.
Participant in focus group 4
Coded 6.4.8 treatment/fixed appliance/elastics
Coded 3.4.1 feelings/embarrassed
| 3 Benefits of orthodontic treatment |
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I think its a good thing cause you get a better smile and your teeth will be straighter but I think its a bad thing as well cause you go through a lot of pain and you cant eat the food that you like.
Participant in focus group 1
Coded 11.2 outcome/appearance
Coded 6.4.2 fixed appliance/pain
Im more confident now I can smile. Before I had any treatment done they were very out like that and theres a picture of me at home and Im smiling and it kind of ruins the picture cause you see these two little white bits sticking over my lip and it looks really bad.
Participant in focus group 4
Coded 11.4 outcome/self confidence
Coded 11.2 outcome/appearance
| Discussion |
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This study has also shown that most patients undergo orthodontic treatment after a referral from their General Dental Practitioner. Other reasons given for undergoing treatment included wishing to improve their appearance and oral health and to stop being teased by their peers. These results are similar to those reported by Bennett and Tulloch.7
However, they also concluded that parental influence was an important factor in encouraging patients to undergo treatment, along with the patients own desire for straight teeth.
The participants in this study also discussed their experiences of living with braces. These findings are similar to those of OConnor.6
By contrast, participants in the study by Bennett and Tulloch7
found their retainers more inconvenient than their braces. Problems with retainers were not discussed in our study because most of the subjects were under active treatment or had just had their braces removed.
The majority of participants in this study were satisfied with the outcome of their treatment, which is similar to the results of the Bennett et al.12
and Bennett and Tulloch7
studies. Some participants in the latter study complained about how they were treated as a person by their clinician and this issue was also identified in the study reported here. Bennett et al.12
found that the parents also discussed the information received about treatment and their childs progress and the manner in which they were treated by the staff. In OConnors6
study, the patients recommendations at the end of treatment were for more accurate treatment timing estimates and discussion throughout treatment. The participants in our study felt that these were also important issues during orthodontic treatment.
The parents in the Bennett et al.12
study suggested that at the end of treatment their children would have improved self-esteem, attractiveness and academic performance. From our qualitative research it is evident that patients also believe that the benefits of treatment will include improved appearance and self-confidence. Bennett et al.12
concluded that parents were satisfied with the result of their childs orthodontic treatment but felt that the costs were too high. The issue of the cost of treatment was not discussed in our study, as all the patients included in the study were treated on the NHS. The participants in this study however, did discuss the high cost of oral hygiene aids.
Davies and Ware16
suggested several attributes of healthcare that should be included within a satisfaction instrument. These attributes include: choice and continuity; communication; interpersonal aspects and technical quality of care. This qualitative study has identified issues of importance to orthodontic patients that can be categorized into the aforementioned attributes before the development of a patient-centred satisfaction survey.
| Limitations of the study |
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To reduce the time required to participate in the study researchers arranged focus group meetings to be held after de-bond clinics and telephone interviews. The timing of these focus group meetings may however, have influenced the patients level of satisfaction with the outcome of treatment. It is probable that the participants included in the latter focus group meetings would be more positive about their experiences of treatment as their appliances had just been removed than those surveyed mid-way through treatment.
For a patient to be interested in taking part in this research project they have to be prepared to devote their time to the study. Commonly, participants in qualitative research are either very happy or unhappy with their treatment and give polarized views. It is important to appreciate however, that the aim of qualitative research is to identify the full range of issues to participants. These should then be incorporated into a measure that can then be used to survey a larger and more representative sample.
Another potential source of bias in qualitative research is the interviewer. This was reduced by using a facilitator, who was not involved in the treatment of the patients included in the study. To further reduce bias, the transcripts of the focus groups and interviews were independently analysed by two researchers, one of whom was non-clinical.
| Strengths of the study |
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| Context of the study |
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| Implications of the study |
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| Conclusion |
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| Contributors |
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| References |
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16 Davies AR, Ware JE Jr. Measuring patient satisfaction with dental care. Soc Sci Med 1981; 15(6): 75160.
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